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May 27, 2011

SLICC Participant Newsletter Vol. 6

Our original goal for the registry was to enroll 1650 patients and follow these patients for a 10 year period. We are happy to report that many of you are just beginning to reach the 10 year follow-up mark. We have now extended our follow up from 10 years to as long as you wish to participate. We believe the data
collected on patients from diagnosis onwards provides a wealth of information for lupus researcher.

Aug 01, 2009

SLICC Participant Newsletter Vol. 5

We are pleased to report that we are now close to our new recruitment goal of 1650 participants. As of May 2009, 1408 participants have been enrolled in the Registry. This constitutes the largest cohort of newly diagnosis SLE patients assembled to date!

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